Determination of Caregiver Burden and Social Support Levels among Caregivers Providing Care for Patients Hospitalized in Palliative Care Clinics
PDF
XML
Full Text

Keywords

Caregivers
Care Burden
Palliative Care
Social Support
Nursing

How to Cite

Karakurt, P., Tuncer, S. K., Çiltaş, N. Y., & Doğan, M. (2020). Determination of Caregiver Burden and Social Support Levels among Caregivers Providing Care for Patients Hospitalized in Palliative Care Clinics. Galician Medical Journal, 27(4), E2020414. https://doi.org/10.21802/gmj.2020.4.14

Abstract

Providing care to someone with a chronic disease requires being physically, emotionally, and mentally energetic. In particular, the presence of a patient with a disease that requires palliative care changes daily activities and routines, increases responsibilities of those who take the responsibility for patient’s care and changes the roles in the family.

The objective of this study was to determine the care burden and social support levels among the caregivers providing care for patients hospitalized in palliative care clinics.

Materials and Methods: The population of this descriptive and correlational study consisted of caregivers taking care of patients treated at the Palliative Care Clinic of Training and Research Hospital between May and October 2018; the sample consisted of 73 caregivers who volunteered to join the study and were open to communication. Data were collected by questioning patients and their caregivers about their sociodemographic characteristics, using the Caregiver Burden Scale and the Multidimensional Scale of Perceived Social Support. Data analysis included percentages, the Kruskal-Wallis test, the Mann-Whitney U test, and the Spearman’s Correlation Coefficient.

Results: The average caregivers’ age was 45.44±13.76 years; 75.3% of caregivers were females, 30.1% of caregivers were literate or had primary school degrees. Caregiver’s gender and educational levels were found not to affect caregiving and social support levels; however, the economic status affected caregiving and social support levels. There was a reverse correlation between the caregiver burden and their social support levels.

Conclusions: With increased caregiver burden, their social support level decreased. Nurses caring for patients in palliative care clinics will benefit from educating and supporting caregivers about clinic and home care; it will result in a positive level of social support for both caregivers and patients receiving care.

https://doi.org/10.21802/gmj.2020.4.14
PDF
XML
Full Text

References

Atagun M, Balaban O, Atagun Z, Elagoz M, Ozpolat A. Caregiver Burden in Chronic Diseases. Psikiyatride Guncel Yaklasimlar - Current Approaches in Psychiatry. 2011;3(3):513-552. Available from: https://doi.org/10.5455/cap.20110323

Inci F, Oz F. Palliative Care and Death Anxiety. Psikiyatride Guncel Yaklasimlar - Current Approaches in Psychiatry. 2012;4(2):178-187. Available from: https://doi.org/10.5455/cap.20120411

Demir M. Palliative Care Ethics. Turkish Journal of Medical and Surgical Intensive Care. 2016 Oct 21;7(2):62–66. Available from: https://doi.org/10.5152/dcbybd.2016.1202

Görgülü Ü, Akdemir N. İleri evre kanser hastalarına bakım verenlerin yorgunluk ve uyku kalitesinin değerlendirilmesi. Genel Tıp Dergisi. 2010;20(4):125-132. Available from: http://geneltip.org/upload/sayi/66/GTD-00528.pdf

Yılmaz DU, Sarı D. The Investigation of The Relationship Between The Sleep Quality and Fatigue Levels of Caregivers Whose Patients With Chronic Disease. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi. 2017;20(2):90-98. Available from: https://dergipark.org.tr/tr/pub/ataunihem/issue/31359/342621

Chan K-Y, Chan M-L. Enhanced psychosocial support as important component of neuro-palliative service. Annals of Palliative Medicine. 2018 Jul;7(3):355–358. Available from: https://doi.org/10.21037/apm.2017.08.19

Aşiret G, Kapucu S. Care burden of the patient relatives who take care of the patients with stroke. Hemşirelikte Araştırma Geliştirme Dergisi. 2012;14(2):73-80. Available from: https://dergipark.org.tr/tr/pub/hemarge/issue/52724/695458

Eyigör S. General rehabilitation principles, quality of life and outcome assessment in patients with stroke. Turk J Phys Med Rehab. 2007; 53(Suppl 1):19-25. Available from: http://www.ftrdergisi.com/abstract.php?id=3213

Palacio G C, Krikorian A, Gómez-Romero MJ, Limonero JT. Resilience in Caregivers: A Systematic Review. American Journal of Hospice and Palliative Medicine®. 2019 Dec 13;37(8):648–658. Available from: https://doi.org/10.1177/1049909119893977

Budak S. Palyatif bakım alan peg(perkütan endoskopik gastrostomi) ve ng(nazogastrik)’ li hastalara bakım verenlerin bakım yükü ve yaşam kalitesinin incelenmesi [Yüksek Lisans Tezi]. Balıkesir:Balıkesir Üniversitesi; 2019.

Küçükoğlu E. Kemoterapi alan hastaların bakım verenlerinin karşılanmamış gereksinimleri, bakım yükü, anksiyete ve depresyon düzeyleri [Yüksek Lisans Tezi]. Ankara: Hacettepe Üniversitesi; 2019.

Bıçkı A. Erişkin yoğun bakım ünitesinden taburcu olacak hastaların bakım vericilerine yönelik "planlı taburculuk eğitiminin" güvenli hasta bakımına ve bakım yüküne etkisi [Yüksek Lisans Tezi]. İstanbul:Marmara Üniversitesi; 2018.

Karakurt P, Ünsal A,Tanrıverdi D. Evaluation of care burden and quality of life of caregivers of patients with stroke. International Journal of Caring Sciences. 2018;11(1):529-542. Available from: http://www.internationaljournalofcaringsciences.org/docs/61_tarniverdi_original_11_1.pdf

Yıldız E, Dedeli Ö, Çınar Pakyüz S. Evaluation of care burden and quality of life among family caregivers of patıents with cancer. HEAD. 2016;13(3):216-225. Available from: https://doi.org/10.5222/HEAD.2016.216

Doğru T. Dahiliye kliniklerinde yatan hastaların yakınlarının bakım yükü ve psikometrik özelliklerinin değerlendirilmesi [Yüksek Lisans Tezi]. Sakarya:Sakarya Üniversitesi;2019.

Gündüz F. Kanserli hasta ve bakım verenlerinin algıladıkları sosyal destek ile umutsuzluk düzeyleri arasındaki ilişkinin belirlenmesi [Yüksek Lisans Tezi]. Aydın:Adnan Menderes Üniversitesi;2019.

Bıçak D. Kanserli hasta ve bakım verenlerin algıladıkları sosyal destek ile yaşam kaliteleri arasındaki ilişkinin belirlenmesi [Yüksek Lisans Tezi]. Malatya:İnönü Üniversitesi;2016.

Steigleder T, Kollmar R, Ostgathe C. Palliative Care for Stroke Patients and Their Families: Barriers for Implementation. Frontiers in Neurology. 2019 Mar 6;10:164. Available from: https://doi.org/10.3389/fneur.2019.00164

Zarit SH, Reever KE, Bach-Peterson J. Relatives of the Impaired Elderly: Correlates of Feelings of Burden. The Gerontologist. 1980 Dec 1;20(6):649–655. Available from: https://doi.org/10.1093/geront/20.6.649

İnci FH, Erdem M. Bakım verme yükü ölçeğinin Türkçeye uyarlanması geçerlilik ve güvenilirliği. Atatürk Üniversitesi Hemşirelik Yüksekokulu Dergisi. 2008;11(4):85-95. Available from: https://dergipark.org.tr/tr/pub/ataunihem/issue/2643/34004

Zimet GD, Dahlem NW, Zimet SG, Farley GK. The Multidimensional Scale of Perceived Social Support. Journal of Personality Assessment. 1988 Mar;52(1):30–41. Available from: https://doi.org/10.1207/s15327752jpa5201_2

Eker D, Arkar H. Çok boyutlu algılanan sosyal destek ölçeğinin faktör yapısı, geçerlik ve güvenirliği. Türk Psikiyatri Dergisi. 1995;10(34):45-55.

Şener A, Aydoğan A, Koç Z. Palyatif bakım ünitesinde yatan hastaların bakımından sorumlu hasta yakınlarının bakım yükleri ile yaşam doyumlarının belirlenmesi. In: International Participatory Palliative Care and Hospice Congress. Istanbul; 2018. p. 46.

Yıldızeli ŞO. İleri ve son evre akciğer hastalığına ikincil solunum yetmezliği olan hastalarda bakim verici yükü ve depresyon ilişkisi. In: International Participatory Palliative Care and Hospice Congress. Istanbul; 2018. p. 76.

Palacio Gonzalez C, Roman‐Calderón JP, Limonero JT. The relationship between positive aspects of caring, anxiety and depression in the caregivers of cancer patients: The mediational role of burden. European Journal of Cancer Care. 2020 Oct 10;Available from: https://doi.org/10.1111/ecc.13346

Öner Öİ. Onkoloji hastalarına bakım verenlerin bakım verme yükü ve algıladıkları sosyal desteğin incelenmesi [Yüksek Lisans Tezi]. Elazığ:Fırat Üniversitesi; 2012.

Zavagli V, Raccichini M, Ercolani G, Franchini L, Varani S, Pannuti R. Care for Carers: an Investigation on Family Caregivers’ Needs, Tasks, and Experiences. Transl Med UniSa. 2019;19:54-59. Available from: http://www.ncbi.nlm.nih.gov/pubmed/31360668

Gür SC. Kanserli hastalara bakım veren bireylerin bakım yükü, yaşam kalitesi ve etkileyen faktörlerin incelenmesi [Yüksek Lisans Tezi]. Şanlıurfa:Harran Üniversitesi; 2018.

Taşkın Egici M, Kök Can M, Toprak D, Öztürk GZ, Esen ES, Özen B, et al. Burden and Burnout of Caregivers Whose Patients Treated at the Palliative Care Center. Journal of Academic Research In Nursing. 2019;5(2):123-131. Available from: https://doi.org/10.5222/jaren.2019.38247

Tanrıkulu S. Evinde bir aile üyesine bakım veren kadınların bakım verme yüklerinin incelenmesi [Yüksek Lisans Tezi]. Ankara: Başkent Üniversitesi;2019.

Ejem D, Bauldry S, Bakitas M, Drentea P. Caregiver Burden, Care Recipient Depressive Symptomology, and Social Exchange. Journal of Palliative Care. 2018 Mar 7;33(2):100–108. Available from: https://doi.org/10.1177/0825859718758120

Delalibera M, Barbosa A, Leal I. Circunstâncias e consequências do cuidar: caracterização do cuidador familiar em cuidados paliativos. Ciência & Saúde Coletiva. 2018 Apr;23(4):1105–1117. Available from: https://doi.org/10.1590/1413-81232018234.12902016

Arias-Rojas M, Carreño-Moreno S, Arias-Quiroz N. The “PalliActive Caregivers” Intervention for Caregivers of Patients With Cancer in Palliative Care. Journal of Hospice & Palliative Nursing [Internet]. 2020 Oct 12;22(6):495–503. Available from: https://doi.org/10.1097/NJH.0000000000000696

Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.